The case of an 8-year-old girl with Lambert-Eaton myasthenic syndrome (LEMS) who had no signs of a tumor, but…
Articles by Patricia Inácio, PhD
A simple, noninvasive test on the skin, called skin sympathetic response, can be used to confirm impairments in the autonomic…
Catalyst Pharmaceuticals kicked off this year’s Rare Disease Day, along with rare disease advocacy partners, with a virtual opening…
The National Organization for Rare Disorders (NORD) has expanded its hands-on tools and courses for organizations focused on rare…
Global Genes is accepting applications for its 2022 RARE Meet-Ups Impact Grant program, which provides funding for in-person meetings…
The rare case of a man with advanced small cell lung cancer (SCLC) who went on to develop Lambert-Eaton…
The recent case of a man with Lambert-Eaton myasthenic syndrome (LEMS) linked to a rare type of lung tumor,…
A patient with extensive-stage small cell lung cancer and Lambert-Eaton myasthenic syndrome (LEMS) saw a marked decrease in his…
Ahead of this year’s Rare Disease Week on Capitol Hill, held virtually July 14–22, the EveryLife Foundation will…
More than half of the people with rare diseases and their caregivers, asked in a survey, were undecided or less…