Sarah Neidler,  —

Recent Posts

• NORD lauds debt ceiling deal but says it limits rare disease research June 6, 2023
• The home accommodations we’ve made for our daughter with LEMS June 5, 2023
• Acetaminophen may compromise safety, efficacy of Firdapse: Study May 30, 2023
• Reflecting on my daughter’s first experience with IVIG therapy May 29, 2023
• New Maryland council to help guide legislature on rare diseases May 23, 2023
• Pursuing your passion can be an important form of stress relief May 22, 2023
• Catalyst to file FDA request soon for increase to maximum Firdapse dose May 16, 2023
• Switching doctors brings unexpected challenges for my daughter May 15, 2023
• NORD adds 9 new rare disease centers to its US network May 9, 2023
• Understanding the impact of stress on my daughter’s LEMS symptoms May 8, 2023