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As a LEMS Patient, I’m Concerned About the Ongoing IVIG Shortage

Patients across the United States receive regular phone calls about their intravenous immunoglobulin (IVIG) treatments. Typically, these calls are to confirm scheduled treatments. However, in recent weeks, the calls are causing distress by relaying messages such as the following: “Due to the nationwide IVIG shortage, we need to cancel…

‘LEMme Tell Ya’ About Me and My Extremely Rare Disease

“Dawn, what you have is extremely rare. It’s so rare that most doctors won’t see another patient with it during their entire careers.” These were the last words I expected to hear from my neurologist, Dr. Roople Unia, when she called to give me the results from my voltage-gated…