Stretcher-Bearers – a Column by Lori Dunham

Lori Dunham and her family have lived all over the world, thanks to the U.S. Navy. She and her husband have three children and currently live in North Florida. At age 14, their daughter was diagnosed with the rare disease Lambert-Eaton myasthenic syndrome. Lori’s mission in writing is to inspire and encourage those who find themselves in the role of caregiver to a loved one with a rare disease. When she is not writing or homeschooling her two youngest, Lori enjoys reading, baking, and spending time with family.

These Tips Help Me Prepare for Our Next Doctor’s Appointment

For the first year after our daughter Grace was diagnosed with Lambert-Eaton myasthenic syndrome (LEMS), our schedule was filled with doctors’ appointments. Referrals to neurologists, rheumatologists, dietitians, and physical therapists abounded. Add in monthly IVIG treatments, and it felt like we lived at the hospital.

How Books Inspire Us to Embrace Our Circumstances

The paths of those affected by Lambert-Eaton myasthenic syndrome (LEMS) hold many twists and turns. Our family has experienced many ups and downs since our daughter Grace was diagnosed. The promise of treatment brought elation, but the reality of minimal results from that…

How Our Family Is Fighting Depression as Quarantine Continues

Our family started quarantining almost a year ago this week. Our daughter Grace has a compromised immune system due to Lambert-Eaton myasthenic syndrome, which made us especially careful and protective of her health and well-being. For the first four months of quarantine, we embraced family time wholeheartedly. Our son was…