Living with a chronic disorder such as Lambert-Eaton myasthenic syndrome (LEMS) can lead to anxiety, stress, and feelings of isolation. Recreational therapy can help to promote a greater sense of psychological and physical well-being. About LEMS LEMS is a rare autoimmune disorder that affects the nerve cells controlling muscle…
Health Insights
Tube Feeding in LEMS: Will I Ever Need It?
While tube feeding in Lambert-Eaton myasthenic syndrome (LEMS) may not be very common, there have been reports of patients needing it. Here is some information about LEMS and tube feeding. What is LEMS? LEMS is a rare autoimmune disorder that affects the nerve cells controlling muscle movement. The primary…
How to Prepare for IVIG When You Have LEMS
Intravenous immunoglobulin (IVIG) infusion is a treatment option for people with Lambert-Eaton myasthenic syndrome (LEMS) who do not respond to immunosuppressive medications. The following are some tips and helpful information to assist you in preparing for your IVIG appointment. Before the appointment It is very important that…
Sleep Hygiene for LEMS Patients
People with Lambert-Eaton syndrome (LEMS) may experience sleep problems. Because a good night’s sleep is essential to your physical and mental health, and to a good quality of life, it may be beneficial for you to practice sleep hygiene. What is sleep hygiene? Sleep hygiene is defined as…
Brain Fog in LEMS
While it’s not a classic symptom, some people with Lambert-Eaton myasthenic syndrome (LEMS) report experiencing brain fog, or difficulties with thinking, remembering and processing information, affecting both their personal and professional life. What is LEMS? LEMS is a rare autoimmune disease that mainly affects muscles in the…
Tips for LEMS Caregivers
A person who has a rare genetic disorder such as Lambert-Eaton myasthenic syndrome (LEMS) may require frequent help from caregivers to accomplish everyday tasks. As a caregiver, you often may be stretched to the limit meeting the needs of the patient. People with LEMS have muscle weakness, mainly in…
Independent Living for People With LEMS
Having a chronic condition such as Lambert-Eaton myasthenic syndrome (LEMS) can be particularly concerning if you are living alone. However, there are steps you can take to help you live well and independently. Get educated With a chronic disease, you are in a different place than someone with an…
How to Help a Family Member With LEMS
If a member of your family received a diagnosis of Lambert-Eaton myasthenic syndrome (LEMS), their life may greatly change as a result. Here are some ways you can help support them after their diagnosis. What is LEMS? LEMS is a rare disease where the immune system mistakenly attacks the…
Will LEMS Affect my Sex Life?
Receiving a diagnosis of Lambert-Eaton myasthenic syndrome (LEMS) may have you wondering whether the autoimmune disease will affect your sex life. Or you may already be experiencing difficulties. Below is some information about how LEMS may affect your sexual activity and some tips on how to…
Planning for the Future After a LEMS Diagnosis
Receiving a diagnosis of a rare disease such as Lambert-Eaton myasthenic syndrome (LEMS) can be frightening. Here is some information that may help — about how this disease can impact your life and tips for planning for the future. How will LEMS affect lifespan? There isn’t a straightforward answer…
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