Being diagnosed with Lambert-Eaton myasthenic syndrome (LEMS) after living over a decade with progressive neuromuscular symptoms was a relief, at first. For so long, my symptoms came and went, and none of the specialists I saw could tell me what was causing them. However, my relief was quickly followed…
Patients across the United States receive regular phone calls about their intravenous immunoglobulin (IVIG) treatments. Typically, these calls are to confirm scheduled treatments. However, in recent weeks, the calls are causing distress by relaying messages such as the following: “Due to the nationwide IVIG shortage, we need to cancel…
“Dawn, what you have is extremely rare. It’s so rare that most doctors won’t see another patient with it during their entire careers.” These were the last words I expected to hear from my neurologist, Dr. Roople Unia, when she called to give me the results from my voltage-gated…
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