Lambert-Eaton News Forums Forums Diagnosed: What now? Building your LEMS healthcare team

  • Building your LEMS healthcare team

    Posted by Kevin Schaefer on September 2, 2025 at 8:21 am

    Hello, LEMS community!

    Living with a rare disease like LEMS can make finding the right specialists and building your healthcare team especially challenging. It requires finding knowledgeable people who can meet your needs, often through trial and error and a lot of patience. No matter how difficult it is, it’s important not to settle. You want to ensure that you’re getting the best care possible.

    What has your experience been with building a healthcare team? What challenges have you encountered? Do you have any tips for others in the community that you would like to share?

    replied 2 months ago 1 Member · 0 Replies
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