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  • Coalition Will Address Racial Disparities in Rare Disease Communities

    Posted by Forum Moderator on June 16, 2020 at 9:33 am

    The Black Women’s Health Imperative has created a Rare Disease Diversity Coalition focused on reducing racial disparities in the rare disease community. Read more about it here.

    What are some specific topics you hope the coalition will address?

    Dawn DeBois replied 3 years, 10 months ago 1 Member · 1 Reply
  • 1 Reply
  • Dawn DeBois

    Member
    June 16, 2020 at 9:44 am

    I hope they will address the economic factors that prohibit rare disease patients without financial resources from accessing the most well versed providers for their disease states. Often times these patients are patients in minority communities.

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