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LEMonS or Rare Disease Patient with LEMS?
Poll: I have met many LEMS patients in person; and I have to be honest, there are quite a few that I have met who do not like the term LEMonS for grouping our rare disease patients together with a nickname. Some find it offensive. What about you? Do you prefer to be called a LEMon or a patient with LEMS?
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2 Replies
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Dawn,
I don’t think its offensive at all personally. I don’t really have a preference on either one but think its nice to have a nickname/term of endearment.
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Someone please make a t-shirt!!! “Making lemonade out of LEMonS” with a picture of a zebra sipping a lemonade! and #raredisease 🙂
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