LEMS walking (video)

[Anonymous]

Do you walk like this? My mom does and she has Myasthenia Gravis. ACHR positive. MUSK negative. VGCC PQ and N negative.

[Price Wooldridge]

That’s a very good video illustrating the hip weakness from LEMS. Personally I don’t recall if I looked like this when I had my initial crisis in 2009 and couldn’t walk or get out of a chair. Now I just look a bit stiff legged when my hips are weak. But, I have recently seen videos from two other LEMS patients who do now or have exhibited this amount of hip drop in their walks. It’s a remarkably visible sign of the hip weakness of LEMS.

[Anngail Norris]

I kind of walk like a penguin. It’s hard to keep my balance so I take smaller steps wider apart and with the side to side motion shown here. I’m not sure it’s my hips but my balance that is my problem.

[Price Wooldridge]

Interesting description. I have video of myself when my hips were fairly weak, and “penguin” might describe it. At least it looks somewhat stiff-legged.

[Alan Stone]

The Miami Dolphins have a wide receiver last name Waddle and when he makes a great play his teammates gather around him and do the “waddle” dance. I’ve been doing that dance since I was diagnosed in 2016.

[Author]

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