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    • #20755

        Do you walk like this? My mom does and she has Myasthenia Gravis. ACHR positive. MUSK negative. VGCC PQ and N negative.

      • #20765
        Price Wooldridge

          That’s a very good video illustrating the hip weakness from LEMS. Personally I don’t recall if I looked like this when I had my initial crisis in 2009 and couldn’t walk or get out of a chair. Now I just look a bit stiff legged when my hips are weak. But, I have recently seen videos from two other LEMS patients who do now or have exhibited this amount of hip drop in their walks. It’s a remarkably visible sign of the hip weakness of LEMS.

        • #20766
          Anngail Norris

            I kind of walk like a penguin. It’s hard to keep my balance so I take smaller steps wider apart and with the side to side motion shown here. I’m not sure it’s my hips but my balance that is my problem.

            • #20767
              Price Wooldridge

                Interesting description. I have video of myself when my hips were fairly weak, and “penguin” might describe it. At least it looks somewhat stiff-legged.

            • #20768
              Alan Stone

                The Miami Dolphins have a wide receiver last name Waddle and when he makes a great play his teammates gather around him and do the “waddle” dance. I’ve been doing that dance since I was diagnosed in 2016.

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