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Reflexes and LEMS – What’s happening and what to expect
One of the classic signs of Lambert-Eaton Myasthenic Syndrome is reduced or absent deep tendon reflexes, such as those in the knees or ankles.
This can be surprising or confusing when you first encounter it. But why does this happen, and what does it mean for you?
In LEMS, the communication between nerves and muscles is impaired because the body’s immune system attacks the calcium channels that help nerves release signals. This affects how your muscles respond to nerve stimulation—including reflexes.
Were your reflexes affected when you were diagnosed with (or started feeling symptoms of) LEMS?
Have your reflexes changed over time with treatment?
Prior to starting IVIG, I had decreased reflexes in my lower legs and ankles. With time and after several months of IVIG, my reflexes started coming back. I did notice a change in speed while I was taking Firdapse.
Why Reflexes Matter:
Reflex testing helps doctors understand how well your nerves and muscles are working.
Reduced reflexes are a hallmark symptom of LEMS and help differentiate it from other conditions.
Reflexes might improve as treatments like amifampridine (Firdapse) or IVIG start working.
Understanding reflexes can help you track your disease progress and treatment response.
Share your experience with reflexes and LEMS! Whether you’re newly diagnosed or have been managing LEMS for years, your insights can help others better understand this important symptom.
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