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  Sharing your story for Rare disease day!

  Posted by Ashley on January 25, 2022 at 4:35 pm

  Hey all!

  As most of you know by now, I am sharing posts this month to prepare us for Rare Disease Day 2022!

  I know many of you have shared your stories here with us, but this month, I want to encourage you all to share your stories with your friends, family, coworkers, and social media!

  If you’re not ready to share on your personal social media, you can also share your story on the Rare Disease Day page on NORD’s website!

  If you’re interested, you can share your story here!

  If you want, you can also share your story with us if you haven’t before!

  We’d love to hear from you!

   

  Ashley replied 2 years, 11 months ago 0 Member · 0 Replies

  • #Lambert-Eaton
  • diagnosed with lambert eaton syndrome
  • diagnosis story
  • lems story
  • life with LEMS
  • Rare Disease Day
  • share your rare
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