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This week’s Zoom meeting will be on “How to optimize LEMS with nutrition” featuring Kerri Dodson, a nutritionist!
Hey all!
I know I posted a general reminder for our monthly Zoom meeting yesterday, but I
just wanted to let you know that we will have a special guest joining us this Friday, September 26th for our zoom meeting!@Rene‘s nutritionist, Kerri Dodson, has graciously agreed to join us and discuss how our diet can affect autoimmune disease and specifically how to lessen our symptoms!
Kerri has asked that we submit any specific questions we may have to her a couple of days in advance. If you have any specific questions, please leave a comment with them below so I can relay them to her!
Looking forward to seeing you all and learning more about nutrition for LEMS and autoimmune disease in general!
See you guys Friday at 5:30 PM! If you have any other friends with LEMS, feel free to send them an invite as well! 🙂
You can access our meeting here at 5:20 pm EST! 🙂
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20 Replies
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Can’t get on zoom whats the password
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I can’t either. What’s the password?
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The linked website requests a “meeting passcode”.
Help.
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Tried everything still can’t get on zoom doesn’t work
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Hey everyone, apologies to anyone who had trouble joining on Friday. We kept this meeting short anyway. But to avoid future issues, I will send an email invite for the next one. Sometimes tech issues are unavoidable, but hopefully this will resolve them in the future. Hope everyone had a great weekend!
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Since several of us were not able to gain access today can this call please be rescheduled and a password sent out in advance?
Thanks so much!
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Hey everyone, sorry I’m just seeing these messages now. Apologies for anyone who had trouble joining. I’m sure we can have Kerri join us again at some point. Please message me and Ashley if you need the link again or have any trouble joining.
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Sorry about this everyone! We’ve never had a password, so I’m not sure what happened on our end. I can try to set up another meeting with Kerri!
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I ran across the notice for this meeting the day before it was to happen. I already had a conflict that I was unable to undo. Was this zoom recorded? If so, could I get a link to the recording? Thanks is advance for listening.
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Thanks Ashley. It is on my calendar.
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Awesome! We will see you then! 🙂
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what is password? i cannot access zoom
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Sending you a message!
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Requires a password. 5:24 PM Oct 28, day of the zoom meeting. Please redo this meeting or save it so we can view it without password.
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Hi @Lee
I’m not sure if there was a miscommunication, but our next meeting is not until November 21. We had our October meeting last Friday the 24th. We have one meeting a month!
We do not record our meetings due to privacy for our members!
Also, we are currently putting together an e-mail list to send the link out to avoid this issue going forward. We will be using the e-mail your account is registered with here. I’ll let you know when we send it out.
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Ashley. Please discuss the role of regulating magnesium in a LEMS diet. What should a LEMS patient do together enough Mg and not too much. How much Mg should we strive to get.
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Hi Lee,
This is a good question to ask your neurologist! I cannot advise how much magnesium you should be taking!
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Ashley. One more question. This might be a bit off topic, but I have a hot tub set at 99 degrees. Short soaks on cold nights seem to soothe my sore muscles. Is this normal for LEMS patients. Exercise in hot weather (90 degrees) bothers me and zaps my energy.
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Hi Lee,
I’ve heard that warm baths/hot tubs can take a lot out of some people, while they help others! A soak in a hot tub also helps me as do hot showers but everyone is different!
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