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  • #WHATMAKESMERARELEMS Challenge!!

    Posted by Dawn DeBois on February 11, 2020 at 9:34 am

    What Makes Me Rare LEMS CHALLENGE! ⁣⠀
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    At Lambert-Eaton News, we are celebrating Rare Disease Day, which is February 29. It’s the day we demand more awareness, more action, more compassion. Let’s flood the internet with our voices to make known our strength⁣⠀
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    • So, you’re probably wondering, how? Your voice is powerful and carries ripples to not only our communities and with it, we want to create a video montage at the end of the month of all people from different rare disease communities, showing and telling us why you are rare. So, if you are comfortable, we are taking video submissions.⁣⠀
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    *We will also be posting written #WHATMAKESMERARELEMS stories throughout the month of February*⁣⠀
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    • So, which do you want to do?
    1. For videos:⁣⠀
    Record yourself and tell us who you are, where you are from, and most importantly what makes YOU are rare. Post on your IG, and tag us in the video! Don’t forget to share it using the hashtag #WHATMAKESMERARELEMS ⠀

    Note: we will be creating a video with all the participants. If you want to be be part of this initiative email us your video to [email protected] and be sure to use “What Makes Me Rare LEMS” in the subject line.⁣⠀
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    2. For written submissions: ⁣⠀
    Tell us who you are, where you are from, what your rare disease is, but most importantly why YOU are rare. And, send us a photo of yourself — we’ll be sharing throughout the month of Feb! When you post on your IG, tag us in and don’t forget to share it using the hashtag #WHATMAKESMERARELEMS⁣⠀
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    *Email all submissions to [email protected] and be sure to use “What Makes Me Rare LEMS” in the subject line*

    [caption id="attachment_15109" align="alignnone" width="300"] Don’t forget, caption your story or comment with #WHATMAKESMERARELEMS[/caption]

    Dawn DeBois replied 4 years, 2 months ago 0 Member · 0 Replies
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