Lambert-Eaton News Forums Forums Living With LEMS Why low-impact exercise matters for LEMS

  • Why low-impact exercise matters for LEMS

    Posted by Ashley on July 30, 2025 at 7:25 am

    For those of us living with Lambert-Eaton Myasthenic Syndrome (LEMS), exercise can be tricky. Pushing too hard can exacerbate symptoms, but remaining inactive can lead to increased stiffness, weakness, and fatigue. That’s where low-impact exercise comes in.

    Low-impact movements, such as gentle stretching, walking, swimming, or chair-based exercises, can help maintain muscle function, improve circulation, and support overall well-being without placing excessive stress on the body.

    Have you tried low-impact exercise? If so, do you notice a difference in your fatigue or muscle control when you stay gently active?

    For me, staying active really helps. I try to get all of the things I need to do before sitting down on the couch at the end of the day. I’ve found that once I sit down for the afternoon, my fatigue hits me, and then I have an even harder time getting back up.

    Do you have an exercise routine, or do you go by how your body feels day-to-day?

    Personally, I try to do a mix of both! I try to listen to my body because I have a habit of overdoing it. I try to get at least 4-6K steps a day (if I’m able to!), but usually I can get about 8k.

    Listening to your body is crucial—some days movement helps; other days rest is the priority. What advice would you give someone newly diagnosed with LEMS who’s afraid to exercise?

    Let’s talk about how low-impact activity has helped us manage LEMS. Share your experiences, tips, or questions —your insight might be exactly what someone else needs to hear!

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