Lambert-Eaton News Forums Forums In the News Xperiome Platform Aims to Streamline Searches for Rare Diseases

  • Dawn DeBois

    Member
    September 10, 2020 at 4:03 pm

    I think this is a great idea! So many providers do not have the time to research new therapies for rare diseases and sometimes what is found on social media for rare disease patients is slanted or not reliable. Having a place to share patient feedback and perhaps find new clinical trials for rare diseases is a win-win!

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