Karen Foshee
Forum Replies Created
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Received 2nd dose of Pfizer vaccine on March 1st. Symptoms were the same as after 1st vaccine dose… second day following, I had fatigue and rested all day. No pain at injection site. Friends and family are mostly against the vaccine due to the internet ‘gossip.’ We each have to make our own truly educated/informed decision. My doctors have all been YES for taking the vaccine. That answered it for me.
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Thanks for sharing your experience, Kevin. I had the Phizer vaccine Friday. All went well yesterday. Woke this morning, Sunday, with unusual fatigue, feeling ill, along with LEMS weakness. Returned to bed; sleeping off and on. No fever.
Hope others will join our vaccine updates! -Karen
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Hello Ashley, Price and LEMS friends,
My first dose is scheduled later today through the hospital system that includes the majority of my doctors. I’ve been told that the dose could be Pfizer or Moderna, but I’ll make a point to ask. I have apprehension, but reading your reviews has helped! I feel fortunate that the vaccine was offered to me. I’ll let everyone know how it goes! – Karen
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LOVE IT SO MUCH !!!!
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Just found the little checkbox for Email notifications! Yay!
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Thanks, Price. I’m on the 10/10/5 today. Before any medication (Mestinon or Firdapse), I’d awaken with leg weakness most days. Now, my leg weakness worsens towards evening. Maybe the titration. I have so many questions on LEMS and how it affects others of us. I question my diagnosis, since I know so little of this disease!
Off topic: Is there a way to get email notifications for forum message responses? Thanks again!!
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Ashley, that is beautiful! What a purposeful, well thought of way to share LEMS and to remind yourself to stay strong! I’m 66 and you have me thinking… can I be this BOLD? I’m going to seriously consider it. 🙂
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Thank you, LEMS friends, for your responses! It is so comforting to not feel so alone in this new journey. I’m on the fifth day of Firdapse, 10 mg, this morning and no tingling/numbness this morning. Little jittery and eye blurriness, but I can handle that with the energy it gives me to walk up and down my condo’s stairs AND play with the grandkids.
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Hello, LEMS friends – I’m in the early days of Firdapse. Titration day 4. This morning I took the first 10mg dose and was it ever frightening! Thirty minutes after ingesting, I felt a wash of strange feelings come over me. Mostly jittery, then, tingling and numbness around my mouth/face. It’s been about an hour now and that feeling continues around my mouth, but to a lesser degree. I’m so hopeful for this medication to ‘work,’ but if this is what happens every time I take it… I don’t know. Any guidance for me? Hope we will all have a strong and happy day! – Karen