[Jessica Jones]

I also do not like Firdapse as well as Ruzurgi… And I have tried Cellcept, but it has been years. I didn’t notice any improvement on it. The only immunosuppressant that has been effective for me is Rituxan. I take it in conjunction with IVIG and these, along with oral Mestinon and Firdapse, have my condition pretty well controlled.

[Jessica Jones]

I know someone diagnosed with MG who uses Vyvgart and it works very well for him, but MG and LEMS are different fundamentally, so I’d be interested to know the biochemistry behind how they expect Vyvgart to work for LEMS and MG both effectively.  I have finally achieved balance with my current treatment and am stable, so it would be difficult for me to risk that balance by joining a clinical trial, but I would like more information before making a decision.