[Julia Munson]

What is IVIG? I’ve  seen several  people reference this.  Is  it often recommended as  part  of a LEMS treatment plan?

Newbie here!   I’ve only been on Firdapse for 10 days.

Thanks!

[Julia Munson]

Mine was triggered by ovarian cancer.

[Julia Munson]

Hi Joanne,

Thank you for your response.   Can I ask  how long you’ve been on it?

I started noticing something wasn’t “right” with my legs last summer.  I then was diagnosed with ovarian cancer in December, and began treatment pretty  much right away.  That  involved 6 rounds of chemotherapy with a major surgery in the middle.  My body is  spent.  It’s been a month since my last chemo (I’m done with it) and I have trouble walking….I can’t discern how much is the  LEMS snd how much is the neuropathy from the chemo.  I  can  hobble around with my walker – usually have slightly better energy in the morning….but then am mostly in bed from early afternoon on.

I’m  learning to be patient and give my  body the rest it needs after such an arduous treatment protocol – and my LEMS was caused by the cancer.

I’m looking for hope – so when you say the medication gave you  your life back….I’d love  to hear more if you’re open to sharing.  Thank you so much.

[Julia Munson]

Thank  you for responding, Ashley, and for  your tips.

And can you say  what this medication has done for you?  What difference it has made?   I know  it’s the recommended medication, but  all I find are the warnings and none of the benefits.