Tina Sadler
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A diagnosis of LEMS was made in a woman at the age of 23 years. She had become aware of ptosis. In her late teens. she developed weakness in the limbs and had difficulty in speech. chewing and swallowing. She was noted to have bilateral ptosis facial weakness, poor palatal movements and weakness of neck flexion and tendon reflexes were absent
Anti-VGCC antibodies were positive on three occasions (titres 105-282 pmol/I:
positive >30 pmol/) and anti-AchR antibodies were negative. Neurophysiologica studies strongly supported LEMs. -
Hi all.
I’m not sure if I’ve already done this. Sorry if I have.
I’m Tina. I live in Tremadog, North Wales. In the U.K. originally from England.
my 1st symptoms (droopy eyelids, the LEMs waddle) began when I was 13 years old. I was eventually diagnosed in 1995 when I was 24 years old.
its nice to meet everyone. -
I was diagnosed in January 1994
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- I had symptoms at 13. Was diagnosed when when I was 24. LEMs was mentioned in my records at the start, but doctors didn’t test me for it, as they thought I was too young. That was in 1982. I was diagnosed in 1994. I suppose it was rarer back then.
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Hi. My 1st symptoms were droopy eyelids. Then walking slow. I couldn’t keep up with the kids at school.