The LEMS community is making progress through advocacy
When our daughter Grace was diagnosed with Lambert-Eaton myasthenic syndrome (LEMS) at age 15, I didn’t think anything good could come of it. However, as time has passed and her health has…
Stretcher-Bearers — Lori Dunham
Lori Dunham and her family have lived all over the world thanks to the U.S. Navy. She has a degree in human resources but enjoys writing to encourage and inspire others. When her daughter Grace was diagnosed with Lambert-Eaton myasthenic syndrome at age 15, Lori sought community and encouragement from those walking a similar path. Lori’s mission in writing is to inspire and encourage those who find themselves in the role of caregiver. When she is not writing or homeschooling her two youngest, Lori enjoys reading, baking, and spending time with family. Currently they live in Jacksonville, Florida.
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My daughter finally returned to one of her favorite activities
When my girls were 10 and 12, the Navy moved our family from the warm climate of Florida to the shores of New England. We embraced Connecticut wholeheartedly and couldn’t wait to see snow.
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Oh, for a place where everybody knows your name
I grew up in a little town tucked away in northeastern Pennsylvania. Every Wednesday and Sunday, my family members would wind our way down the mountain on a stretch of narrow roads. We’d head…
A friend’s journey with Lambert-Eaton myasthenic syndrome
None of us want to become a part of a statistic like the number of people with Lambert-Eaton myasthenic syndrome (LEMS). Odds are that most of us won’t, considering that there are only…
My daughter is showing progress after years of LEMS treatment
Note: This column describes the experiences the author’s daughter had with various medications. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Five years ago,…
Considering the whole family when planning a vacation
Our family has eclectic interests. These differences have been amplified by our middle daughter’s diagnosis of Lambert-Eaton myasthenic syndrome (LEMS) when she was 15 years old. That daughter, Grace, is a homebody.
The surprise revelation of how LEMS brings my daughter pride
Some memories are indelibly scored into the fabric of our being. For me, one such memory is the first time I pushed my daughter Grace in a wheelchair. She wasn’t yet diagnosed with…
The benefits of having a pet while raising a daughter with LEMS
We’re pet people in my family. Specifically, we love dogs. There’s nothing like coming home to a dog that is overcome with excitement at the sight of you. You can’t help but smile. Our…
If you’ve been recently diagnosed with LEMS, please read this
If you’ve recently been diagnosed with Lambert-Eaton myasthenic syndrome (LEMS), you’ve come to the right place. Finding the LEMS community was life-changing for me, and I hope it will be for…
A reminder that we need to stay vigilant to protect our health
Our daughter Grace was diagnosed with Lambert-Eaton myasthenic syndrome (LEMS) in July 2019, when she was just 15 years old. To say this diagnosis changed our lives is an understatement. Grace’s…
By sharing our LEMS stories, we can help and encourage others
So many people in this world live isolated lives. Add in a rare disease and we can feel very alone. I’m grateful that we in the Lambert-Eaton myasthenic syndrome (LEMS) community have…
How we fight the fatigue that comes with LEMS
Life changed when our daughter Grace was diagnosed with Lambert-Eaton myasthenic syndrome (LEMS). As her health declined rapidly and drastically, it was hard to watch her lose mobility and control of her…
Can your eyes show health problems related to LEMS?
My daughter Grace was in fifth grade when I got a call from the school nurse. She asked me to come to the school to get Grace because she was complaining of a headache.