Stretcher-Bearers — Lori Dunham

For women with Lambert-Eaton myasthenic syndrome (LEMS), it’s concerning that there are little to no data on pregnancy and LEMS. That’s why I’m thrilled to introduce Kristin Williams, a 31-year-old registered…

When our daughter Grace was diagnosed with Lambert-Eaton myasthenic syndrome (LEMS) at age 15, I didn’t think anything good could come of it. However, as time has passed and her health has…

I grew up in a little town tucked away in northeastern Pennsylvania. Every Wednesday and Sunday, my family members would wind our way down the mountain on a stretch of narrow roads. We’d head…

None of us want to become a part of a statistic like the number of people with Lambert-Eaton myasthenic syndrome (LEMS). Odds are that most of us won’t, considering that there are only…

Note: This column describes the experiences the author’s daughter had with various medications. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Five years ago,…

Our family has eclectic interests. These differences have been amplified by our middle daughter’s diagnosis of Lambert-Eaton myasthenic syndrome (LEMS) when she was 15 years old. That daughter, Grace, is a homebody.

Some memories are indelibly scored into the fabric of our being. For me, one such memory is the first time I pushed my daughter Grace in a wheelchair. She wasn’t yet diagnosed with…

We’re pet people in my family. Specifically, we love dogs. There’s nothing like coming home to a dog that is overcome with excitement at the sight of you. You can’t help but smile. Our…

If you’ve recently been diagnosed with Lambert-Eaton myasthenic syndrome (LEMS), you’ve come to the right place. Finding the LEMS community was life-changing for me, and I hope it will be for…

Our daughter Grace was diagnosed with Lambert-Eaton myasthenic syndrome (LEMS) in July 2019, when she was just 15 years old. To say this diagnosis changed our lives is an understatement. Grace’s…

So many people in this world live isolated lives. Add in a rare disease and we can feel very alone. I’m grateful that we in the Lambert-Eaton myasthenic syndrome (LEMS) community have…

Life changed when our daughter Grace was diagnosed with Lambert-Eaton myasthenic syndrome (LEMS). As her health declined rapidly and drastically, it was hard to watch her lose mobility and control of her…