Author Archives: Brian Murphy Ph.D.

About the European LEMS Registry

Patient registries collect information about the health status of people with a certain disease. They are particularly important for rare diseases such as Lambert-Eaton myasthenic syndrome (LEMS), bringing together a small patient population and gathering information about how the disease affects them. Researchers in academia and pharmaceutical companies can…

Paramedical Treatment for LEMS

Lambert-Eaton myasthenic syndrome (LEMS) can cause difficulties with many daily activities. Paramedical treatment is an important aspect of care to help improve your quality of life if you have LEMS. What is paramedical treatment? Paramedical treatment is that which is provided by professionals outside of the usual medical fields…

Your Treatment Team for LEMS

Lambert-Eaton myasthenic syndrome (LEMS) can lead to symptoms that affect a number of different systems in the body. Here is information about some of those symptoms, along with medical specialists that can offer treatment. Neurologist LEMS primarily affects skeletal muscles or those under voluntary control, leading to weakness in…

Palliative Care for LEMS

Lambert-Eaton myasthenic syndrome can lead to a number of debilitating symptoms. The condition is often accompanied by small cell lung cancer. If you have LEMS, palliative care may be able to help reduce your symptoms and improve your overall quality of life while undergoing treatment. What is palliative…

FAQs About Ruzurgi for LEMS

Ruzurgi (amifampridine) is a medication by Jacobus Pharmaceutical for the treatment of Lambert-Eaton myasthenic syndrome (LEMS). The U.S. Food and Drug Administration approved Ruzurgi to treat LEMS patients ages 6 to less than 17. Canada approved the treatment for patients ages 6 and older. How does Ruzurgi…

FAQs About Firdapse as Treatment for LEMS

Firdapse is an approved treatment for patients ages 17 and older with Lambert-Eaton myasthenic syndrome or LEMS. How does Firdapse work? Firdapse works by improving the ability of nerve cells to communicate with muscle cells. It does this by helping restore the release of acetylcholine, a cell-signaling molecule that…

How to Prepare for IVIG When You Have LEMS

Intravenous immunoglobulin (IVIG) infusion is a treatment option for people with Lambert-Eaton myasthenic syndrome (LEMS) who do not respond to immunosuppressive medications. The following are some tips and helpful information to assist you in preparing for your IVIG appointment. Before the appointment It is very important that…

FAQs About IVIG for LEMS

Lambert-Eaton myasthenic syndrome (LEMS) is a rare autoimmune disorder that results in progressive muscle weakness. One treatment that doctors can use for patients who do not respond to immunosuppressive drugs is intravenous immunoglobulin (IVIG) infusions. What is IVIG? IVIG is a treatment that involves giving patients intravenous…

How to Help a Family Member With LEMS

If a member of your family received a diagnosis of Lambert-Eaton myasthenic syndrome (LEMS), their life may greatly change as a result. Here are some ways you can help support them after their diagnosis. What is LEMS? LEMS is a rare disease where the immune system mistakenly attacks the…