Mary Chapman, features writer —

Living with a chronic disorder such as Lambert-Eaton myasthenic syndrome (LEMS) can lead to anxiety, stress, and feelings of isolation. Recreational therapy can help to promote a greater sense of psychological and physical well-being. About LEMS LEMS is a rare autoimmune disorder that affects the nerve cells controlling muscle…

While tube feeding in Lambert-Eaton myasthenic syndrome (LEMS) may not be very common, there have been reports of patients needing it. Here is some information about LEMS and tube feeding. What is LEMS? LEMS is a rare autoimmune disorder that affects the nerve cells controlling muscle movement. The primary…

The Muscular Dystrophy Association (MDA) is encouraging the U.S. Centers for Disease Control and Prevention (CDC) to recommend that people living with neuromuscular diseases (NMDs) have early access to any federally approved COVID-19 vaccine. The MDA made its request in a letter to members of the…

To empower and equip members of the rare disease community to engage state leaders in matters of importance to patients and their families, the National Organization for Rare Disorders (NORD) has launched an initiative across the U.S. Its goal is to establish a Rare Disease Advisory Council (RDAC)…

People with Lambert-Eaton syndrome (LEMS) may experience sleep problems. Because a good night’s sleep is essential to your physical and mental health, and to a good quality of life, it may be beneficial for you to practice sleep hygiene. What is sleep hygiene? Sleep hygiene is defined as…

A photo of a bespectacled young boy, his red baseball cap slightly askew as he  enjoys time outside, will be featured on the front cover of an upcoming calendar in the “Same But Different” contest to raise awareness about rare disorders. “A Lovely Day Out in Kew Gardens,”…

While it’s not a classic symptom, some people with Lambert-Eaton myasthenic syndrome (LEMS) report experiencing brain fog, or difficulties with thinking, remembering and processing information, affecting both their personal and professional life. What is LEMS? LEMS is a rare autoimmune disease that mainly affects muscles in the…

A person who has a rare genetic disorder such as Lambert-Eaton myasthenic syndrome (LEMS) may require frequent help from caregivers to accomplish everyday tasks. As a caregiver, you often may be stretched to the limit meeting the needs of the patient. People with LEMS have muscle weakness, mainly in…

Having a chronic condition such as Lambert-Eaton myasthenic syndrome (LEMS) can be particularly concerning if you are living alone. However, there are steps you can take to help you live well and independently. Get educated With a chronic disease, you are in a different place than someone with an…

Same But Different, a nonprofit U.K. group that uses art for social change, is inviting people to choose their favorite photographs in a calendar contest to heighten awareness of rare diseases, including amyotrophic lateral sclerosis (ALS). The organization’s panel of judges has pared the number of contest submissions…