FAQs

Ruzurgi (amifampridine) is a medication by Jacobus Pharmaceutical for the treatment of Lambert-Eaton myasthenic syndrome (LEMS). The U.S. Food and Drug Administration approved Ruzurgi to treat LEMS patients ages 6 to less than 17. Canada approved the treatment for patients ages 6 and older. How does Ruzurgi…

Firdapse is an approved treatment for patients ages 17 and older with Lambert-Eaton myasthenic syndrome or LEMS. How does Firdapse work? Firdapse works by improving the ability of nerve cells to communicate with muscle cells. It does this by helping restore the release of acetylcholine, a cell-signaling molecule that…

Lambert-Eaton myasthenic syndrome (LEMS) is a rare autoimmune disorder that results in progressive muscle weakness. One treatment that doctors can use for patients who do not respond to immunosuppressive drugs is intravenous immunoglobulin (IVIG) infusions. What is IVIG? IVIG is a treatment that involves giving patients intravenous…

Many people enjoy using treatments that enhance beauty, such as Botox. For others, Botox might be used to ease migraines or treat other medical conditions. However, for patients with Lambert-Eaton myasthenic syndrome (LEMS) and myasthenia gravis, Botox treatments can be very dangerous. What are LEMS…

For people with Lambert-Eaton myasthenic syndrome (LEMS), finding out that they also have small cell lung cancer (SCLC) can be frightening. However, chemotherapy and radiation therapy directed toward SCLC have proven beneficial in treating lung cancer as well as alleviating LEMS symptoms. Here are the answers to…

A diagnosis of Lambert-Eaton myasthenic syndrome (LEMS) often leaves patients and their families with a plethora of questions. Reliable information can be scarce for rare diseases, whether it’s a matter of where to go for news, treatment options and concerns, or how to come in contact with other patients. Below are…