In 2023, Catalyst Pharmaceuticals will be working to expand the availability of its Lambert-Eaton myasthenic syndrome (LEMS) treatment Firdapse (amifampridine) to Asian countries. The company will first focus its efforts in Japan, where its partner DyDo Pharma is now conducting a Phase 3 clinical trial…
News
A case of Lambert-Eaton myasthenic syndrome (LEMS) was identified in an older man who was initially hospitalized with a wrongful diagnosis of aspiration pneumonia. He was later diagnosed with small cell lung cancer (SCLC), an aggressive form of lung cancer that is often associated with LEMS, but was too…
A decision by the Federal Court of Appeal of Canada is restoring the availability of Ruzurgi (amifampridine) to treat children and adults with Lambert-Eaton Myasthenic Syndrome (LEMS) in that country, Medunik Canada announced. Specifically, the court returned for a second time the notice of compliance, or approval, …
Teva Pharmaceuticals is seeking authorization from federal regulators in the U.S. to produce and sell a generic version of Firdapse (amifampridine), an approved treatment for Lambert-Eaton myasthenic syndrome (LEMS). Firdapse, marketed by Catalyst Pharmaceuticals, was approved by the U.S. Food and Drug Administration in 2018 as the…
An elderly man in Japan is reported to have developed Lambert-Eaton myasthenic syndrome (LEMS) as a likely side effect of being treated with Tecentriq (atezolizumab) for a type of cancer called small cell lung cancer (SCLC). The report, “Atezolizumab-Induced Lambert-Eaton Myasthenic Syndrome in a Patient With Small-Cell Lung…
Little evidence was found for a causal relationship between the use of an immune checkpoint inhibitor (ICI) for the treatment of cancer and the onset of Lambert-Eaton myasthenic syndrome (LEMS) or myasthenia gravis (MG), according to a new review study. Still, because most included data came from case…
While unhappy with shortcomings in the legislation, the National Organization for Rare Disorders (NORD) nonetheless is applauding a year-end U.S. spending package that included several programs and reforms crucial to those with rare diseases, including Lambert-Eaton myasthenic syndrome (LEMS). As part of an expansive $1.7 trillion package, signed…
Among those with Lambert-Eaton myasthenic syndrome (LEMS) and other forms of paraneoplastic neurological syndrome, younger patients often experience a longer delay between symptom onset and seeking medical attention — a delay that can result in worse clinical outcomes, a new study indicates. “Patients aged [65 years or younger]…
The National Organization for Rare Disorders (NORD) is requesting applications from patient advocacy organizations to host new or existing patient registries for rare disorders, such as Lambert-Eaton myasthenic syndrome, on its IAMRARE platform. To expand its collection of patient-reported data, which could lead to new treatments and…
People with small cell lung cancer (SCLC) treated with the immune-based cancer therapy atezolizumab are at an increased risk of developing Lambert-Eaton myasthenic syndrome (LEMS), according to a database analysis of adverse events. The analysis was detailed in a study, “Increased risk of Lambert-Eaton myasthenic syndrome (LEMS)…
Recent Posts
- Study suggests LEMS is often missed in people with small cell lung cancer January 21, 2026
- A girl and her dog jog for home, offering hope that things will get better January 12, 2026
- New data link LEMS to several cancer types, not just SCLC December 17, 2025
- Chatting with a pillar of the community about life with LEMS December 15, 2025
- Rare cases of LEMS in pregnancy show need for personalized care November 19, 2025
- Thanks to her LEMS treatment, my daughter is thriving November 17, 2025
- LEMS and autoimmune enteropathy co-occur in rare disorder case October 22, 2025
- Deal reached in US legal dispute over approved Firdapse generic September 16, 2025
- Updated guidelines urge LEMS testing for lung cancer patients August 19, 2025
- Firdapse boosts muscle strength in Japanese adults with LEMS: Study July 15, 2025