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IVIG- Has anyone transitioned to sub cutaneous immunoglobulin treatment?
I truly credit how well I manage with my LEMS diagnosis to my monthly round of IVIG infusions. Having my treatment delayed during the start of the IVIG shortage last summer was truly eye opening for me. My symptoms got exponentially worse. However, I would like the highs and lows of my energy levels to stabilize in a way that my 4 week rotation of treatment doesn’t allow. I’m NOT ready to go to a 3 week rotation. So, I’m hoping my insurance approves my doctors request for me to transition to sub cutaneous infusions. These would allow me to treat myself at home, weekly, and keep my donated antibody levels at a constant. I know of one other LEMS patient who successfully transitioned and loved it. How about you? Has anyone here transitioned to sub q immunoglobulin treatment?
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