• This topic is empty.
Viewing 0 reply threads
  • Author
    Posts
    • #18169
      Price Wooldridge
      Moderator

      Yes, that fourth week going into my IVIG immunoglobulin infusion can get “interesting”. As my friend Dawn reminds me, the life of antibodies we receive through IVIG are good for about three to three and a half weeks, generally. This holds true for me. My IVIG schedule is set exactly 4 weeks to the day on the calendar. So every fourth Wednesday I have my first day of the two day infusion. That gets interesting, because those antibodies I receive may not be hanging around those exact 4 weeks to the day.
      And so it was this cycle. I woke up the Monday before the Wednesday infusion with no energy. I didn’t feel well. As the day progressed, I felt a little better, but my hips were weak. That evening I felt the ever familiar crushing fatigue and could barely drag myself to bed. It was the same pattern Tuesday, exactly. Then on Wednesday the “miracle” happens. I get that flood of 45 grams of immunoglobulin and my LEMS world changes as I walk out the infusion center door. All is right with the world, and I feel so much better. The crushing fatigue is gone. Ditto the hip weakness!
      So that’s how IVIG and LEMS can be. Crazy! It’s all about learning how to live with and roll with Lambert-Eaton.

Viewing 0 reply threads
  • You must be logged in to reply to this topic.

©2021 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or    

Forgot your details?

Create Account