Cancer Screening After Your LEMS Diagnosis
Recently I’ve read several comments on cancer screening, lung nodules, and other concerns after receiving the LEMS diagnosis. The medical papers say LEMS is triggered by cancer in 50-60% of cases. I’ve also read and been told by my neurologist, LEMS patients have better results treating cancer than the general population.
What is the protocol for cancer screening after diagnosis? I’m going to give you mine, because I think it’s typical. After diagnosis, I was quickly scheduled for a full body CT scan with contrast. I was also scheduled for a PET scan right behind that.
After these initial screenings, I was scheduled for follow-up chest CT scans every 3 months for a year. After that, we dropped them to every 6 months. Now, I do a CT once a year.
What has your cancer screening protocol been since your LEMS diagnosis? And do you think it’s been adequate?
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