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  • Choosing what to share with others about LEMS

    Posted by kwschaef on November 14, 2023 at 9:45 am

    Hey everyone!

    Check out this column by Lori Dunham. Lori writes about how her daughter, who has LEMS, is making decisions about how much she wants to share about her health with others. She wants to have equal opportunities for socializing and education, and she doesn’t want to always focus on LEMS. Lori shares how she respects Grace’s boundaries and her need to make her own choices.

    As caregivers or people who have LEMS, can you relate to this notion? Do you prefer to be more private or public about your LEMS story?

     

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