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Do you have experience with using Rituxan to treat your LEMS?
Hey Y ‘all!
I know that my dear friend and co-moderator @pricewool has made it public that he may be switching to Rituxan therapy, and I may down the road as I continue to have other autoimmune issues.
I was hoping to get more feedback on how many of us have tried Rituxan and what your treatment was like.
Would you recommend it? Did you receive IVIG before Rituxan?
Lambert-Eaton News has published a really informative article about FAQ’s for Rituxan therapy if you are unfamiliar with the drug. It has links to multiple studies that involved LEMS patients who received Rituxan which are great to look over and seem encouraging.
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1 Reply
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Hola Ashley!!!
Cuando hablas de ritumab te refieres a rituximab?
A mi me lo administran desde hace 3 años , por vía inyectable no he tenido efectos secundarios adversos.
Mi Neurologo me lo recomendó porque las inmunoglobulinas y la plasmaferesis no me hacían efecto.
Así que ahora mi tratamiento es Firdapse, Mestinon y rituximab.
Espero haberte ayudado con mi respuesta.
Un saludo
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