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    • #20631
      Price Wooldridge

        How do you feel your LEMS symptoms vary day to day?

        I often can feel quite a difference in my LEMS symptoms. One day I may have more hip weakness than another. My LEMS voice appears and disappears, often within hours.

        Tell us how your LEMS symptoms vary.

        Poll (please answer in comments)

        1. Symptoms feel relatively stable day to day
        2. vary but it’s hardly noticeable.
        3. vary moderately from day to day
        4. vary dramatically day to day

      • #20675

          I’d say #3, some days are better than others.  I wish I could determine some cause and effect for which I get, that would be great.

          • #20677
            Price Wooldridge

              Bernie I am probably a 3 too. Sometimes it’s kind of explainable, but often a mystery. That’s LEMS.

          • #20681

              Definitely #4 depending on activity. Some days I can walk and others I can’t if I’ve done any activity.

              • #20690
                Price Wooldridge

                  Do you have any reasons you’ve thought of that cause these big swings? Me it could be a missed dose, the last week of my IVIG cycle, an overactive day, or excessive heat. If you think of what may be causing yours, let us know.

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