-
Dysautonomia and LEMS
I was diagnosed with dysautonomia and POTS (Postural Orthostatic Tachycardia Syndrome) about six months prior to my LEMS diagnosis because I was experiencing severe issues with my Autonomic Nervous System. Most of my LEMS symptoms are autonomic in nature including severe acid reflux, POTS, inappropriate sinus tachycardia, and little to no sweating/heat intolerance. I have to take Protonix daily to ensure that my acid reflux is in check. I also take Propranolol and Corlanor (which has been a godsend!) to keep my heart rate down to a normal level. Before I was taking both of these medications, my resting heart rate was in the 160s and my exercise rate was over 200! Thankfully, most of my symptoms are now managed with medication and I am known to carry my bag of medications everywhere I go because If I have one missed or late dose, chaos ensues.
What issues do you experience related to your Autonomic Nervous System and how do you cope with them?
Log in to reply.