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Have you considered Occupational Therapy?
Recently on a Facebook group, I was touched by someone new to LEMS, suffering much anguish about what they could do after their diagnosis. A LEMS diagnosis is life-altering. Finding ways to adapt and plan your life after experiencing LEMS symptoms is a major part of coping with the disorder.
“LEMONS Make LEMONADE.” A friend gifted me this little sign as a reminder. It’s what we must do!
My recommendation to this person was to consider having some sessions with an OT, or Occupational Therapist.
Here’s an article on LEMS and OT.
https://lamberteatonnews.com/occupational-therapy/Have you considered asking your healthcare provider for a referral to an Occupational Therapist? If you see an OT, what has your experience been like?
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2 Replies
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I have LEMS and am also an Occupational therapist. I use many of my skills as an OT to help me cope, modify my environment/routine depending on how I feel. It’s trying to find a new normal. There is adaptive equipment that can help when we have difficulty opening items or reach. There is equipment to help with making showers safer also. I’m willing to share in any way I can.
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I didn’t realize you are an OT. We’d love to hear how you use that knowledge to best adapt your daily life with LEMS. We should do a Zoom call on that and make it the big topic. Perhaps in May for our monthly call? Let me know. We can promote it here and on social. Let me know!
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