Have you encountered barriers to your healthcare with LEMS?
While there haven’t been studies I can find on barriers to healthcare with LEMS, there have been with our sister disorder, generalized Myasthenia Gravis due to their higher patient population. I think it’s appropriate we can draw similar conclusions for Lambert-Eaton patients.
Here’s an excellent study on the impact of social determinants of health on individuals and the implications for patient support programs in the NIH library. Read it HERE.
Have you experienced roadblocks to your treatments or getting a diagnosis? Do you have financial concerns, or has your mental health been an issue?
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