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Have you had surgery since being diagnosed with LEMS?
Morning all! 🙂
I wanted to share two articles that are pretty informative about surgery (specifically anesthesia) for LEMS patients with you all! I know many of us have concerns or anxiety when it comes to having procedures, especially when we are dealing with healthcare providers unfamiliar with LEMS. In this case, I think we have to advocate for ourselves (as we often do) to inform providers about the treatment and care of our LEMS.
To sum it up, patients with LEMS and myasthenia in general should not be given “neuromuscular blockers” or in simpler terms, paralytics.
Using a paralytic in surgery will increase the time we take to wean off a ventilator because we are extra sensitive to them due to our calcium channel antibodies.
The first one was published in The Continuing Education in Anaesthesia Critical Care & Pain Journal at Oxford and the other was in The Journal of Clinical Anesthesia
Have you had surgery after your LEMS diagnosis? Or even before diagnosis when you were experiencing LEMS symptoms?If so, I’d love to hear about your experiences!
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