How has your LEMS treatment changed since diagnosis?
Last week, @Lori Dunham wrote an article about how much has changed in the four years since her daughter’s LEMS diagnosis.
This article made me think about my diagnosis in 2016 and how much has changed for me as well!
Have you had many treatment changes in the last four years? OR big changes in treatment since your LEMS diagnosis?
Lori states, “Nowadays, our LEMS journey feels more like smoldering embers rather than a raging fire, but the disease is still very much a part of our lives.”
I really like this analogy as it holds true for me as well. Sometimes, the wind (flares) can make the fire seem bigger for a period of time, but usually, it’s manageable.
I know many of you are at the beginning of your LEMS journey, figuring out what life will look like, and navigating the treatment options to find what’s best for you!
Lori closes the article with “Today, if you’re at the beginning of this journey and feel hopeless and alone, know that others have gone before you. They’re fighting a war that’s similar to yours. The mountain you face may seem insurmountable, but with time, things can get better. Most importantly, you are not alone.”
Do you have any takeaways from this column?
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