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How long did it take you to get a diagnosis?
Since we are celebrating Rare disease month this month, I wanted to talk to you all a little more about your diagnosis process. I know many wait years for a diagnosis, and I know that I was extremely lucky to have been diagnosed in less than a year after I began having symptoms. I’m curious to hear about your experiences.
How long did you wait for a diagnosis after you began having symptoms of LEMS?
How many doctors did you have to see before someone took you seriously? For me, it was a few.
What was your first symptom of LEMS?
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