After reading about how long it took others to be diagnosed, I feel fortunate that my diagnosis “only” took about 9 months. I went to 9 different doctors from cardiologists to orthopedic to neurologist. I had stress tests, wore a heart monitor for 2 weeks, had epidurals, MRI tests, and went to physical therapy for almost 4 months because I couldn’t walk or stand up. All my blood work and tests showed “normal”. I kept telling the doctors this was NOT normal. Since I also have lymphoma, my oncologist tested me for paraneoplastic syndrome. Finally, thinking I might have POTS, my primary care doctor sent me to a neurology specialist. The good news was I didn’t have POTS. The other news was that I have LEMS. I finally managed to get Ruzurgi, and once the correct dosage was determined, I got a version of my life back. I can now walk unaided and can stand up for enough time to fold the laundry! My doctor is a saint. I am so grateful that he didn’t tell me my symptoms were all in my head. He actually laughed when I told him about the physical therapy. The moral of the story is don’t give up. You know if there is something wrong with your own body. You have to advocate for yourself.