-
IVIG immunoglobulin, the roller coaster
Since my second of two infusions, 8 days ago, it’s been a bit of a roller coaster. There are a number of symptoms, but here I’ll just comment on exercise and my walking. Day one out, fantastic feeling, then not so great for a couple of days. The past few days I settled into some good, strong walks with free feeling hip movement. And then today (frown). As soon as I set out, my hips felt bound up. I could feel it immediately, and with a little up incline, felt some fatigue too. What in the world is going on?! That’s the mystery. Why indeed. I’m pretty sure, if I reported this to my neuromuscular neurologist, she wouldn’t have an explanation. Neither do I. It just happens. If you notice these variations, especially early after your infusion, I’d enjoy hearing your story.
Log in to reply.