-
IVIG pre-medications
Good morning all!
Hope you all enjoyed your weekend!
For those who receive IVIG, I know we have talked about the pre-medications we receive before treatment in a couple of other threads, but I wanted to start a new thread specifically for this topic. I think it may be easier for those who are new to the group to find this topic and I’d like to hear what works for everyone.
I know we have a lot of new members lately who are in the process of getting a diagnosis and starting treatment for LEMS. I would love to offer them advice for when they receive IVIG for the first time.
Here are some of my tips:
- It may take a while to find what pre-medications work best for you! I know it can be discouraging to experience severe side effects from a treatment, especially if you are unsure what to expect. The first week I got IVIG was brutal for me because I experienced migraines so bad that I could barely open my eyes. I wasn’t sure if I wanted to continue treatment because of this and almost gave up… but I gave it a couple of months to find a routine that worked for me and I’m glad I did!
- One of the most effective ways to prevent post treatment migraines was the introduction of 500mL of saline before and after my infusion. Staying hydrated is key! I keep several different electrolyte powders around to mix with water and bring the largest cup I have for my treatment days. If you have dysautonomia, be sure that whatever you choose to hydrate you contains sodium and potassium. High sodium content is necessary for anyone with dysautonomia! My personal favorites are ones recommended by Dysautonomia International and include Normalyte, Drip Drop, and Liquid IV. Low sugar Gatorade will also work!
My pre-medication regimen includes 500mL of saline prior to my infusion followed by 50mg of Benadryl, 500mg Tylenol, and 25mg solumedrol. At the end of my infusion, we follow with another 500mL of saline.
What is your pre-medication regimen?
Log in to reply.