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Muscle Jerks?
I have LEMS. My daughter shows signs of it, but hasn’t been diagnosed. We’re both medically complex.
She’s developed something new – episodes of muscle weakness where she’s almost locked in like a seizure (negative eeg) and rapid fire muscle jerks that are extremely painful. Has anyone had these symptoms as a part of their LEMS illness?
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1 Reply
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@heatherbluephoenixart-com
Hi Heather,
I personally haven’t experienced either of those, but maybe someone else in the group has. Sorry you both are going through this
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