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Neurologist Visit – “You Look Great!” Pt. 2
In my previous topic I detailed the ongoing battle with my diagnosing neurologist because she says, “You look great!” Yes, we butt heads. Yes, I stand my ground. She’s not there when I’m at my worst.
This second part, I want to touch on my ongoing left shoulder weakness. Over a year ago I appraised her of this weakness developing. She denied it was LEMS and suggested it might be a rotator cuff injury. It felt like LEMS to me. It acted like LEMS to me. And I’m the person who has LEMS, for heavens sake!
Now over a year later, I’ve had imaging. The X-rays show old bicycling injuries, a broken collarbone, a Grade 3 separation, and an old rotator cuff injury. These are OLD injuries from the early 90’s! The current reading is, Normal. What’s a guy to do? Once again she is denying this is LEMS because it’s “unilateral” (one sided). Let me repeat, I’m the LEMS patient. It feels and acts like LEMS. Could she be right? It’s possible. I won’t discount her opinion, but it’s just that, an opinion. She wants me to see PM&R (physical medicine and rehab), and wants an MRI. I will discuss this at my next appointment with my physical therapist (in OM&R) in a couple of days.
Have you ever had LEMS weakness develop only on one side? Your experience could help me!
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