Review of my first in-home infusion
Good morning my fellow LEMons!
Last week I had my first in-home infusion and I wanted to share my experience with you all!
Overall, there were no dealbreakers, but there were definitely some kinks in the process, which I did expect for the first time.
The pharmacy delivered the medication and supplies to my home a few days before my infusion. There was some miscommunication, and I was sent IV supplies and not sent anything for my mediport. I called and they overnighted me the correct supplies. However, I realized they were still missing quite a few things.
Luckily, my infusion nurses had extra supplies when they came to my house, and we were able to make it work. One thing I noticed is that they sent the exact number of things I needed and did not send any extras to account for errors. Unfortunately, this became a problem when my pump tubing began to malfunction halfway through Friday’s infusion. I also was not sent an IV pole which became a little bit of a challenge because the IV tubing I was sent was pretty short.
The nurses elected to come later in the day (2 pm) than when I normally start, so we were infusing until 10:30 pm. This was not ideal for me, as I normally would finish around 2:30-3 pm at the infusion center. I think that the home infusion company thought I was exaggerating when I told them my infusion took a total of 7 hours if things ran smoothly. Next month we are already prepared to start at 8 am and one of the nurses is coming back for both days! I also have a list written down to ensure I have extras and everything I need!
Hopefully, we will have most of the kinks worked out for my February infusion!
Did you have any kinks to work out starting IVIG at home?
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