The Case For Time Release Firdapse
This is exciting news that Catalyst Pharmaceuticals is working towards a time release version of Firdapse, the only FDA approved drug for adults with LEMS. Currently it’s only available as 10 MG tablets, with most patients dosing at 2 to 4 hour intervals. In my case I take my dose every 4 hours. That’s quite a schedule when you consider how busy a daily routine can be! And occasionally I am late with a dose and have to slide doses the remainder of the day. Oh, and my last dose is usually around 8 PM, so my Firdapse coverage tapers off somewhere around midnight, until the next morning dose. Time release Firdapse could be a game changer, making 24 hour coverage possible. As it is now, I’ve had overnight LEMS issues, so I take one 180 MG time release Mestinon for overnight coverage. It helps.
I’m anxious to hear when Catalyst begins their trials for this new version. Maybe I can give it a go!
What’s your case for a time release Firdapse schedule?
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