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    • #17683
      Price Wooldridge
      Moderator

      Yesterday, February 28th, was National Rare Disease Day. It was our day to call attention to our rare disorder, Lambert-Eaton Myasthenic Syndrome. Personally, I posted something on my Facebook page, and I know Ashley @ashleygregory757 did as well. We want people to be aware of LEMS.
      It’s also a good opportunity to recognize those associations and organizations who advocate on our behalf too. They help promote awareness, research, and community. These include the Muscular Dystrophy Association, the National Organization of Rare Diseases, Global Genes, and others.

      Here’s an article on these organizations, and their mission.

      Importance of Advocacy for LEMS Patients

    • #17699
      Ashley Gregory
      Moderator

      Hey @pricewool

      I couldn’t agree more! Thanks for sharing this article with us!

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