Lambert-Eaton News Forums Forums Diagnosed: What now? “Weighing the pros and cons of Mestinon” for LEMS

  • kevin-deihl

    Member
    June 7, 2022 at 3:41 pm

    For me, taking Imodium every other day works. Mestinon, I believe extends the period between Firdapse doses, which is every 4-5 hours. Imodium also helps the day after IVIg infusion.

  • Ashley

    Member
    June 20, 2022 at 7:38 am

    @specialk70

    Thanks for that tip! I didn’t try taking Imodium when I trialed Mestinon but that might be something I try in the future!

Log in to reply.