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You know you’ve got LEMS. How to tell others what it is.
If you’re recently diagnosed with LEMS, how in the world are you going to tell others?! The first step is to understand for yourself how LEMS works. Understanding what has gone wrong with you is the first step before you can explain it to your family and others. Ground zero for me was when my neurologist said, “You’ve got Lambert Eaton.” My first action when I got home was to pull up the Internet on my computer and start the Google searching. How about you? What did you do first, after hearing those words?
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