[Gary Chudd]

It appears they want to dominate the market with Firdapse and edge out Jacobus out of business. Let Ruzurgi have a portion of the market. I wish there was a way I could get back on Ruzurgi, it worked better for me. They should allow patients that started on Ruzurgi be allowed to continue on it instead of being forced to change.

[Gary Chudd]

Price,
How did you feel after receiving IVIG, I’ve had it four different times, each was for four days and about 4 hours. The first time I got it I got such a severe migraine headache they reduced the dosage which helped. I also had it done twice at home which was more convenient and they gave me a lower dosage to prevent any headaches. Did you see an improvement in your symptoms and how long did it take to see the improvements.

Thanks
Gary

[Gary Chudd]

<b>I was on DAP 3,4 for 3 years which I had it compounded at a pharmacy close to where I lived for $140 per month. I was then able to get on a trial study through CU medical in Denver for about 3 years with the same DAP3,4 until January of 2019 when the study wrapped up abruptly and was told a new drug Firdapse which I had to fight the insurance  company with the help of my neurologist and Tafcare which is a fund for aiding in very high priced drugs. I have been trying to get back on DAP 3,4 which is now Ruzurgi which worked better than Firdapse but it is only approved for people 6 to 17 which makes no since the study I was on had no one that young. Any suggestions to get Ruzurgi.</b>

[Gary Chudd]

I think I was about 50 when they finally diagnosed me with LEGS after many misdiagnoses.