Advocacy Partner: Muscular Dystrophy Association
About the Muscular Dystrophy Association
Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and over 300 related neuromuscular conditions. For nearly 75 years, MDA has led the way in accelerating research, advancing care, and advocating for the support of our families. MDA’s mission is to empower the people we serve to live longer, more independent lives.
Muscular Dystrophy Association supports research, care, and advocacy for Charcot-Marie-Tooth.
For support, guidance, and resources please visit: MDA Resource Center
By Phone: 1-833-ASK-MDA1 (1-833-275-6321)
By Email: [email protected]
Upcoming events
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About Advocacy Partners
The information above is provided by our partner. Learn more about our advocacy partners here.
Recent Posts
- A LEMS patient in the UK shares his diagnosis and treatment story December 19, 2024
- CAR T-cell therapy may be effective for hard-to-treat LEMS: Case study December 17, 2024
- A frigid trip north helped with some LEMS symptoms, but not others December 9, 2024
- Facing long-distance travel challenges after a LEMS diagnosis November 11, 2024
- NORD offering financial support program to cover LEMS costs November 5, 2024
- The challenges of maintaining a healthy weight with LEMS October 28, 2024
- Coping with loss, big and small, in the wake of a LEMS diagnosis October 14, 2024
- Firdapse approved to treat LEMS patients in Japan October 1, 2024
- A friend with LEMS shares her pregnancy journey September 30, 2024
- The LEMS community is making progress through advocacy September 23, 2024