Columns

Why pool exercise is beneficial for my daughter with LEMS

One of my first goals as a parent of toddlers was to teach them to swim, especially as our family lived in mostly warm-weather climates while moving every few years with the U.S. Navy. Much of our family time was spent at the neighborhood pool. Children’s birthday parties all took…

Reflecting on my daughter’s first experience with IVIG therapy

Note: This column describes the author’s own experiences with IVIG therapy. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Our family learned the gravity of words when our daughter Grace was diagnosed with Lambert-Eaton myasthenic syndrome (LEMS)…

Having the talk about what to do in case of an emergency

For the past two weeks, the elevator at my daughter’s school has been out of order. This complicates things greatly for Grace, who was diagnosed with Lambert-Eaton myasthenic syndrome (LEMS) when she was 15 years old. Looking back, I am so grateful we made the decision to home-school our…